ABOUT LEVI

Levi Alexander - he was named long before he came. Levi means pledged to God and Alexander means defender of men.  We had no idea when he was born just how much of a warrior he would be.

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At four months Levi had a bruise on his back that wouldn't go away.  It left us with that nagging feeling that something wasn't right.  Within a day of taking him to the pediatrician we were rushed to VCU because his liver enzymes were elevated and after a horrific 48 hours there, we were sent to the Pediatric Transplant Unit at Georgetown University Hospital.  Levi had a series of tests and procedures which determined he would need a liver transplant. His official diagnosis is Progressive Familial Intrahepatic Cholestasis or PFIC. This is a genetic disorder that causes progressive liver disease which typically leads to liver failure.  While he awaits transplant Levi is stable and doing well, growing like a weed both physically and mentally.